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maybe someone can help me find a reason for all of this pain.....

xxhopexisnotxlostxx started this conversation

waking up each morning feels like the some kind of horrid obstacle course... my back certainly feels like i fell asleep on a hurdle. i have to brace myself for sharp and sometimes incapacitating pain if i want to even attempt to get out of bed. this morning the electrician had to help me out of bed...the super had to let him in to work on my apartment because i couldn't get up. talk about embarassment; some strange man seeing me in my knickers. i'm only twenty five years old but my body feels more like seventy. not one doctor has given me a proper diagnosis. i am sure being uninsured doesnt do much to help. i have a constant sharp pain underneath my left shoulder blade and its getting worse every day. ive been told i have fibromyalgia, myofascial pain syndrome, severe anxiety disorder... so most doctors think alot of this is in my head. i dont think losing circulation or even worse, the complete lose of function in my hands is something i am dreaming inro existance. i dont know what to do. has anyone else here had symptoms that are similar? are there any groups that offer help for chronic pain sufferers? i would like to see someone who can figure out what is going on before irreversable damage is done to my body. im afraid of what may happen if this gets any worse.

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non stop chronic pain
 in response to gcruz...   

Th not be the best advise for you and i know how you feel cuz i have no insurance and one of my prescriptions is $489. for 30 pills a month, but i have just found out that i can go to this place they call Pioneer counsiling and i see a therapist there for depression due to chronic pain and he is able to help me with this medication and i don't have to pay anything. Another thing i might suggest like i say i don't know if this will help you but have you ever taken Methadone? I used to take oxycontin and i became so addicted to them that i actually started trying to stop my pain by injection the medication so i had to have something that would help me come off the oxys and they prescribed me methadone..they used to use it to help heroine addicts in recovery and i gotta say it helped me ease the withdrawls of the meds and i was just thinking if  you could get a doctor to prescribe you this med then you could at least take it during the times that you don't have the money to get the morphine. It's only like $28.00 a month for 120 tablets i take them 4 times a day..Just a suggestion..i will pray for you and i hope you get the help you need. It really sucks not having insurance. I really don't know what your pain is but i do have fibromyalgia too and all i can say is God Bless you because it hurts my entire body every day all day and it is very painful to get up..Hope this helps you in some way

reply to non stop chronic pain
gcruz

Hi.....Sweetie I read some of your stories. I know it is very hard to put pain into words. Last week was the worst week of my life. I did not mention,  to you that in 01/15/2000 I had a morphine pump installed inside my body. This pump has to be refilled every four months. The problems is, I have no health insurance or no money. I was insured with Kaiser. I found a doctor at Kaiser, who has made sure my pump is refilled and he knew I did not have Kaiser insurance. This month Kaiser found out that I was no longer insured with them. So my doctor was unable to refill my pump. I did not know where to turn. I called the doctor who was filling my pump, before I was insured with Kaiser. He is a real jerk!!!!!!!. No insurance and no money, so no refills. I went online to look for help. A doctor from the U.K. sent me a email and stated, that I should call my doctor and get the morphine in tablet form. My doctor is an angel.  I called as many pharmacies as I could. No one had the morphine  in stock. Without the morphine, I would go into withdrawal. Just like a junkie. I finally found a hospital that had the morphine. The pharmacy wanted four-hundred and fifty dollars for sixty tablets. My doctor could not believe how much money they wanted. I told you before I have a wonderful doctor and she called the pharmacy. When my husband came home, he told me it was only eighty-four dollars. My doctor is a saint.  For these last few days the pain has been unbearable. I can hardly walk. I never thought that the pump was helping me so much for the pain. I will read all your stories Brenna. God Bless Grace

reply to gcruz
david2390

xxhopexisnotxlostxx, the answer lies in the bible,as one who has suffered pain for the last 4 years I found relief in the good book, even if you don't believe, it is a jolly good read Brother David

reply to david2390
CATLUV

Have you looked at my pages, auto immune misdiagnosis, chronic pain, betrayals journey to forgiveness? I wake up each morning feeling like i have been hit by a truck. I know. I know. There are others here that know too. You might wanna talk to gcruz, she knows all to well too. She's been facing this for 25 years. Me, about 3. My profile page has my story and all my links for various pages, i think you will relate with a lot. I am 27 in a 80 year old body too. You and I have been betrayed by our own bodies, bodies we don't even recognize anymore. Sound familiar? With you shoulder pain, you have a rib out guaranteed, as a result of the physical and emotional stress, from eveything and i am sure the flu didn't help. Were you vomiting? I wish you lived close, I could do work on you that could at least release that shoulder. I get soma body work done that helps with the pain, take a look at my high prescription prices page for a detailed description. Anxiety meds are cheap, and if you can get into a doc. one that will accept small payments, they are out there and some are willing to work with you, it might start help to combat one problem. I too, have bad anxiety, which dramatically increases with my cycles of inflammation of the auto immune disease. I have to have meds. period. I do meditation and reiki too. I'm afraid even if you can find a good doc. they won't have answers. Pain meds may be helpful, along with things like massage and yoga ~ once you get to a place where you can get out of bed, get ready and make it out the door. I know. I have been to countless docs, at the cost of my parents, with no answers. Like grace (gcruz) says, they don 't know what to do with us. Start doing online research about auto immune disease if you can, so you can get a sense of what looks more like you. Reactive Arthritis, Reiter's syndrome, Undifferentiated Spondylolarapathy is another, of course, Lupus and FM. There are a lot, all group into different areas that affect various combos. of our bodies. i.e. skin, joints, vision, digestive, neurological, kidneys, etc. I have over 50 symptoms that wax and wane and have been on a cheap drug that was originally meant for malaria, and it helps to decrease severity of symptoms, may be another good idea to consider. It's called plaquenil or hydroxychlorinquine (generic). They put you on it first to see if it helps. Are you swollen/inflammed a lot? the sed rate blood work is cheap and helps docs see if you are dealing with auto immune for sure. I hope that you find some help from this, check out those pages if you havent or when you have the energy

Brenna 

reply to CATLUV